Orphan drugs for rare diseases have helped or saved hundreds of thousands of patients like 2-year-old Luke Whitbeck, but families and insurers are picking up the astronomical cost.
Drugmakers have brought almost 450 orphan drugs to market and collected rich incentives but nearly a third of those products aren’t new or were repurposed multiple times, an investigation shows.
Follow the twists and turns of the orphan drug industry over the past three decades.
The former Congressman championed the Orphan Drug Act decades ago but now he fears it’s being manipulated to make money.
President Barack Obama recounted his health care accomplishments in his farewell address to the nation Tuesday night.
Charlie Oen was addicted to heroin as a teenager. At 25, he’s now clean and a peer counselor in Lima, Ohio, where he tries to help people who started using drugs before he was born.
El 21st Century Cures Act que firmó el presidente Barack Obama el martes 13 de diciembre es un éxito legislativo para la industria farmacéutica. Qué podría pasar con los servicios de medicina preventiva.
A breakdown of winners — and a few losers — in the sprawling Cures Act approved by the House.
En 2017, muchos más planes de salud en los mercados de seguros requerirán que los consumidores paguen una sustancial parte del costo de los medicamentos más caros, dicen, para disuadir a pacientes muy enfermos de elegir sus planes.
A Kaiser Health News analysis finds that the portion of federal marketplace plans requiring people to pay a third or more of the cost of specialty drugs have jumped from 37 to 63 percent since 2014.
Responding to a national epidemic, many state Medicaid programs are making the coverage rules for these opioid-based medicines tougher so that physicians will think twice before prescribing them. But some worry that legitimate pain patients could suffer.
Colorado’s approval of a ballot measure sets the stage for efforts in other states.
The FDA’s drug-approval team is short more than 700 people and losing skilled staff members to the drug industry.
New research tracks how the widespread availability of these high-powered medications is causing a high rate of hospitalizations for opioid poisoning among children.
The plans sought to discourage costly HIV patients by not including their drug needs in formularies or requiring high cost sharing, a Harvard Law School group says in a complaint filed with HHS.
The research, published in JAMA Psychiatry, finds significant increases in the use of anti-depressants and depression diagnoses for women using hormonal forms of contraceptives, such as the pill.
The flu vaccine is available for longer windows of time. Experts say to weigh convenience and science in deciding when to roll up your sleeve.
Patients living in the Northeast are more than twice as likely to get a powerful drug than those in the Midwest or South and African-Americans were 26 percent less likely to get the medicine, a study in the journal Neurology finds.
As news that Mylan will make available a generic version of its own brand-name product, KHN answers key questions about how this development could affect consumers.
A study in JAMA Internal Medicine suggests that patients known as the “worried well” are actually the highest utilizers of mental health care — and likely to receive antidepressants.